Data and Research
Data-informed decision-making is critical to fostering systemic change and creating positive outcomes for Oregon's youth, but timely and accurate data is often out of reach for local leaders.
During Phase One of the Upstream Initiative, design pilots identified significant barriers to effective data utilization.
These challenges include:
Data access issues. This includes difficulty locating and analyzing data across organizations; challenges disaggregating data for the first 1,000 days population; and comparing data across state-level systems.
Fragmented data systems. Multiple agencies collect maternity and early childhood data, but these systems are siloed and incompatible. This creates limited visibility into which children are served, where services are provided, and how effective interventions are across programs.
Implementation barriers. Technical challenges are compounded by privacy concerns, need for cross-agency collaboration, and resource constraints, making evidence-based decision-making complex and resource-intensive.
Identifying shared measures for informed decision-making
To begin to address these challenges, The Collaborative partnered with design pilots to develop a shared set of measures that:
Reflect the realities and opportunities for the first 1,000 days population
Create a framework for shared learning and accountability
Focus on existing metrics rather than creating new measures
Emphasize measures that span systems and agencies
Improve communication of results to stakeholders
Enhance the capacity for evidence-based decision-making
The Upstream Initiative’s shared measures framework is a vital bridge between local innovation and statewide impact. The framework includes both population-level outcomes and system-level indicators that assess whether Oregon families are experiencing health, stability, and connection during the first 1,000 days of life, and whether systems are becoming more coordinated, culturally responsive, and family-centered.
The State of Early Childhood in Oregon
14% of Oregon children under three are living in poverty (<100% FPL)
6.0% are living in deep poverty (<50% FPL)
48% of rural households in Oregon lack sufficient income to meet basic living costs
NSCH 2022-23: Indicator 4.123: Did this child (0-5) receive effective care coordination?
48.5% did not need care coordination
34.2% received needed care coordination
17.3% (42,821 children) did not receive needed care coordination (29th in the country)
35 out of 36 Oregon counties are child care deserts for infants and toddlers
24% of children under five have already experienced one Adverse Childhood Experience (ACE)
Although Oregon is a leading state in Early Head Start, only 11.5% of eligible infants and toddlers have access
Data Hub
National Data Sources
Oregon Plans and Resources
OHSU-designed metric aims to improve social-emotional health services for young children (August 2024)
CCOHVS (Center for Coordinating Oregon Home Visiting Systems)
Oregon State Governance Chart - Prenatal-to-3 Policy Impact Center
Oregon Data Sources
Children and Families
Medicaid/OHP
Birth and Pregnancy Statistics
Economic Hardship
Maternal Mental Health
Early Relational Health
